Planning
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Thu. 23 |
Fri. 24 |
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09:00
10:00
11:00
12:00
13:00
14:00
15:00
16:00
17:00
18:00
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Session 1: Transformations of the frontier between care and research – Gilles Vassal (oncopeadiatrician, Gustave Roussy Comprehensive Cancer Center, Univ. Paris Saclay) ; Franck Bourdeaut (oncopeadiatrician, SIREDO, centre d’oncologie pédiatrique de l’Institut Curie, INSERM U830, Paris) ; Catherine Dekeuwer (philosopher, Univ. Lyon 3 Jean Moulin, IRPhil et SPHère, UMR 7219, Univ. de Paris)
Session 2: Access to Genomics Medicine: inequalities, teamwork between medical specialties, new timelines of the disease – Patricia Blanc (president of the Imagine for Margo association) ; Solenne Carof (sociologist, Sorbonne Univ., GEMASS) and Emilien Schultz (sociologist, CEPED, IRD, Univ. de Paris) ; Ayo Wahlberg (anthropologist, Univ. of Copenhaguen) ; Sophie Julia (geneticist, Génétique Médicale Hôpital Purpan CHU Toulouse, Inserm, UMR 1295, team BIOETHICS)
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Session 4: Envisioning Consent: Children's and their Families' Information and Choice – Maria Cristina Murano (philosopher, Institut de recherche biomédicale de l’Hôpital La Paz, IdiPAZ, Univ. autonome de Madrid, SPHERE, CNRS, Univ. de Paris) ; Arnaud Petit (peadiatrician, Hemato-immuno-oncology, Trousseau Hospital) and Audrey Guilmatre (clinical research ingenieur); Marion Droin-Mollard (psychologist, APHP) and Sandrine de Montgolfier (epistemologist and ethician of biomedical sciences, SESSTIM, Aix Marseille Univ./IPC) ; Béatrice Claret (psychologist, IGR)
Session 6: Seaze and Collect Sick Children's voices – Anthony Wright (Assistant Professor of Childhood Studies, anthropology, Rutgers University) ; Ignasi Clemente (Assistant Professor, anthropology, City University of New York) ; Hélène Lecompte (sociologist, SPHERE UMR INSERM 1246) ; Thibaud Pombet (sociologist, ISP-Faculté d'Education, Institut Catholique de Paris, RCS, Cermes3, Lirtes)
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