Planning
| Time |
Event |
(+)
|
|
09:30 - 10:15
|
Welcoming of participants |
|
|
10:30 - 10:45
|
Inaugural Speech - Sylvain Besle - Nadège Corradini |
|
|
10:45 - 12:30
|
Session 1: Transformations of the frontier between care and research – Gilles Vassal (oncopeadiatrician, Gustave Roussy Comprehensive Cancer Center, Univ. Paris Saclay) ; Franck Bourdeaut (oncopeadiatrician, SIREDO, centre d’oncologie pédiatrique de l’Institut Curie, INSERM U830, Paris) ; Catherine Dekeuwer (philosopher, Univ. Lyon 3 Jean Moulin, IRPhil et SPHère, UMR 7219, Univ. de Paris) - Discutant : Quentin Lade |
|
|
12:30 - 14:00
|
Lunch Break |
|
|
14:00 - 15:45
|
Session 2: Access to Genomics Medicine: inequalities, teamwork between medical specialties, new timelines of the disease – Patricia Blanc (president of the Imagine for Margo association) ; Solenne Carof (sociologist, Sorbonne Univ., GEMASS) and Emilien Schultz (sociologist, CEPED, IRD, Univ. de Paris) ; Ayo Wahlberg (anthropologist, Univ. of Copenhaguen) ; Sophie Julia (geneticist, Génétique Médicale Hôpital Purpan CHU Toulouse, Inserm, UMR 1295, team BIOETHICS) - Discutante : Juliette Froger-Lefebvre |
|
|
15:45 - 16:15
|
Coffee break |
|
|
16:15 - 18:00
|
Session 3: Political Stakes of Genomics Medicine – Stéphanie Ville (Aidons Marina and Grandir Sans Cancer associations) and Stéphane Vedrenne (Eva pour la vie and Grandir Sans Cancer associations); Frédérique Nowak (executive coordinator of the Plan France Médecine Génomique) ; Catherine Bourgain (sociologist and geneticist, INSERM, Cermes3) ; Susanne GATZ (associate Clinical Professor in Paediatric Oncology Cancer Research UK Clinical Trials Unit (CRCTU), Institute of Cancer and Genomic Sciences) - Discutante : Héloïse Pillayre |
|
| Time |
Event |
(+)
|
|
09:00 - 10:30
|
Session 4: Envisioning Consent: Children's and their Families' Information and Choice – Maria Cristina Murano (philosopher, Institut de recherche biomédicale de l’Hôpital La Paz, IdiPAZ, Univ. autonome de Madrid, SPHERE, CNRS, Univ. de Paris) ; Arnaud Petit (peadiatrician, Hemato-immuno-oncology, Trousseau Hospital) and Audrey Guilmatre (clinical research ingenieur); Marion Droin-Mollard (psychologist, APHP) and Sandrine de Montgolfier (epistemologist and ethician of biomedical sciences, SESSTIM, Aix Marseille Univ./IPC) ; Béatrice Claret (psychologist, IGR) - Discutante : Alexandra Roux |
|
|
10:30 - 11:00
|
Coffee break |
|
|
11:00 - 12:45
|
Session 5: Data collection, conservation and re-use: juridical and ethical rules – Catherine Vergely (Association ISIS-Unapecle); Emmanuelle Rial Sebbag (lawyer, CERPOP-équipe BIOETHICS, UMR1295, Inserm/Univ. de Toulouse Paul Sabatier) ; Pascal Borry (professor of bioethics, centre for Biomedical Ethics and Law, department of Public Health and Primary Care, KU Leuven) - Discutante : Marie Castets |
|
|
12:45 - 14:30
|
Lunch Break |
|
|
14:30 - 16:15
|
Session 6: Seaze and Collect Sick Children's voices – Anthony Wright (Assistant Professor of Childhood Studies, anthropology, Rutgers University) ; Ignasi Clemente (Assistant Professor, anthropology, City University of New York) ; Hélène Lecompte (sociologist, SPHERE UMR INSERM 1246) ; Thibaud Pombet (sociologist, ISP-Faculté d'Education, Institut Catholique de Paris, RCS, Cermes3, Lirtes) - Discutante : Solenn Thircuir |
|
|
16:15 - 16:30
|
Conclusion |
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|
